A parent was told their newborn baby was as fragile as glass after an epidermolysis bullosa diagnosis, the BBC reported.

Epidermolysis bullosa is a rare and severe skin disorder that causes painful blistering.

Specialists say the diagnosis changes family life instantly, as parents learn intricate care routines.

Daily bandaging protects sensitive areas of the skin from damage.

Specialized nutrition supports healing, and temperature control helps prevent irritation.

Specialized pediatric teams work closely with families to reduce the risk of severe complications.

Device makers are developing softer textiles to minimize friction and improve daily comfort.

Researchers are running clinical trials, and institutions plan expanded trials of new genetic therapies.

Read the full article on living with epidermolysis bullosa and caring for fragile skin.